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About Our Organization

Polycystic kidney disease (PKD) is one of the world's most common, life-threatening genetic diseases. PKD causes fluid-filled cysts to grow on the kidneys affecting kidney function and often leading to kidney failure and death. Parents with PKD have a 50 percent chance of passing it on to their children. Because it is passed from generation to generation, PKD often affects many people in one family.

A relatively rare form of PKD (autosomal recessive polycystic kidney disease, ARPKD) affects 1 in 20,000 children and often causes death in the first month of life.

There is currently no treatment or cure for PKD but there are more people than ever fighting for a cure. Through events like the Run for PKD, the PKD Foundation is working to find treatments and ultimately a cure to end PKD and improve the lives of all it affects.

Thanks to the efforts of everyone who has ever participated or donated to the Run for PKD, we are closer than ever to the first potential treatment for PKD.

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